Jenna is a full-time college student studying graphic design from Springfield, MA. Jenna doesn’t let XLH define her or stop her from chasing her dreams. She says she finds herself to be stronger and work harder than those who do not have XLH. At the young age of only 18 months, Jenna’s parents noticed she walked different from other kids her age. They brought her to pediatrician who referred her to Shriners. There, it was confirmed through blood work that she had XLH. There are no other known family members with XLH. Jenna’s family found The XLH Network fifteen years ago. When asked what the Network means to her and her family, Jenna said, “Being a spontaneous case, my parents didn’t know anything about XLH. The Network has helped us communicate with other people and learn more about XLH.”